Does type matter?
Why would you just want to "believe" you have hsv-1 genitally, instead of retesting and "knowing". Don't you want to be 100% positive so that you know if and how to inform future partners?
Yes, I "believe" that I have HSV1 genitally. When I was diagnosed, they didn't type it as specifically as they do now. For me, as time has gone on, outbreaks became less and less frequent. I personally don't use any kind of meds. When I first had outbreaks, which were very few, my 1st one was a killer by the way and I personally applied cornstarch to the sore spot. I had my first obvious OB in about 3 years, just about 2 weeks ago and it wasn't nearly as painful as I recall the 1st time around being. This time I simply got a visual of it and said to myself, yep, looks like it could be an outbreak. I tend to get mine in my anal area and there have been times when I've gotten what seemed to be similiar to a paper cut more in the vaginal area and I would only notice that when I tried to urinate. Usually, I just rearrange the angle in which I urinate and that helps to ease the burning. Hopefully, it'll be another 3 years before I have any kind of OB which is more uncomfortable anymore vs. painful. To me, it's now just an open sore. Stress plays a huge roll in the frequency of my outbreaks. Everyone is different. I do believe as time goes on, your body becomes more used to the invasion of the virus and doesn't react as badly.
If you've been living with "genital herpes" for as long as I have, you get used to it after a while and find that you after all is said and one, you really have to ask yourself "does it really matter whether I have HSV 1 genital herpes or HSV 2 genital herpes"? It's so silly to even waste your money to find out. What difference does it make? For me, herpes is herpes and that's the bottom line.
To me, I honestly don't care which one I have, because herpes is just herpes to me and where I have it is genitally. That's it. Why make this so complicated. What's the point? That's how I view all of this. I'm not a doctor and I have no intention of learning all the ins and outs, certainly can't explain it. I have herpes for God sakes, that's it, simple, cut and dry, not a biggie for me, shit happens, life goes on, not the end of the world, I wont' die from it, what difference does it make which "type" I have? Why spend money on something that is simply costly in my book? For peace of mind or to sound informed? Who cares?
Based on my personal experience (20 + years with herpes) and the infrequency of my personal outbreaks and the fact that I don't take meds, I never have and only would consider it if it made someone else "feel safe". As far as I know, I've never passed it on either. I have had my share of unprotected sex with a past boyfriend and he has been tested and always comes up as negative. From reading other people's situations and based on my personal experience, I do "believe" that all I have is HSV-1 genitally. Way back when, when I was diagnosed, they didn't have a typing system where they differentiated between the two. I don't suffer nearly as much, hardly ever, once in 3 years, if that, and then it's simply a discomfort, not suffering by any stretch of the word. After reading what others experience with HSV-2 genitally, I honestly don't "believe" I have HSV2, but again, in my opinion, I still have genital herpes and my belief is, who cares if it's 1 or 2, it's still friggin' herpes. I think most newly diagnosed people for the most part or those who are just coming out of denial, make more of a deal of having herpes than I do, but I only feel that way, because I've finally gotten over it. Believe me, I've been there and done that. Denial and the works.
This question is one which many people often try to challenge me with, or other similiar questions, but many people feel like they "need to know". I feel very strongly about the fact that it's NOT a big deal, so why make it a big deal. I've already done that, cried a million tears and am OK with it now. Someone challenged me on this topic and what people need to understand is that the issue drives me absolutely crazy. Society in general gets on my nerves with the attitudes, the "knowledge" which some people send out as gospel, the self righteous ones who "preach" on and on about morality and all that. All of us have choices and who the heck are we to place our beliefs and to try and "force" other people that they are the only ones who are right. After all is said and done, we are the ones who have to live with ourselves and whether we tell a prospective partner that we have either oral or genital herpes is a simple case of being an honest person, someone who a prospective mate will love and trust because that person shared something so personal about themselves which they felt was important for the other person to be aware of there risks. After all is said and done, I believe that my honesty will win out in the long run and he will be worthy of being with me.
I believe that people will eventually realize that herpes is here, it's not going anyplace...sure, it might be slowed down IF they find a vaccine, but in my heart of hearts, I don't see that researchers find this to be on their high priority list. I personally believe there are many other viruses and diseases which are much more important and earth shattering. I'm so tired of hearing others respond with "OH POOR ME" UGH, it gets old. Shit or get off the pot, ya know. Get over it :-) The sooner people can get used to their new selves, the quicker they can move on and be happy again and feel sexual and loved again. You have to love yourself before anyone will love you. I know you've heard that before!!


17 Comments:
hi, i was just diagnosed with this virus 2 days ago. im only 16...and really dont know what to do. if you can help me in any way it would be greatly appreciated. I'm just really at a loss, and dont know anything. I have so many questions.
Hi there anonymous. I understand what you're going through, so please feel free to email me directly The best thing you can do for yourself right now is to learn as much about this and understand. To get used to your "new skin". The sooner you can get past the sadness, the better person you will become for it. I know it sucks, but sometimes we just have to chin up and move forward. You'll be fine and trust me, it's NOT the end of the world. I look forward to hearing from you.
Luanne
Email me directly
Hi Luanne, thanks for the support thus far. I would really like to talk to you more privately b/c i have so many questions and concerns about what lies in my furute. I tried to email you but it wasnt working. Besides that though, one of my major concerns is in regards to children and telling people. I am in the stage of my life where i don't have a partner and i probably wont for a while. I will be going to college soon and dating/ "hooking up" is huge at that point in time...must you tell EVERYONE that you "hook up" with and/or are "together" with about the virus. I guess my real question is, if you dont have an outbreak and use protection, does the person not infected with the virus have a risk in getting it? The last thing on earth i would want to do is put anyone else at risk. Also, if the answer to that question is no, if when you dont have an outbreak and have sex with a husband (though that is very far in the future for me), can you spread it to them? Anyway, if you could answer that question it would ease my mind a lot. thanks again.
Hi there. Let me see if this will work. Try me here: ms_turtlepoint@yahoo.com
I'll briefly answer some of your questions because I'm headed off to sleep soon. Unfortunately, the "moral" thing to do is to tell. Mind you, I can't preach and tell you you must, but you even mentioned that you wouldn't feel right if you passed it on. Email me and I can put you in touch with a gal who got herpes right around your age, she is a good friend of mine and now is like 21 or 22 maybe. She has a good handle on it and as far as I know, she basically grew up quicker than she needed to as well. I feel for you, because I know this is more devastating because of the social stigma. Casual sex is not going to be as easy for you, but you know, after all is said and done, it shouldn't be something easy for us anyway. I believe (and I'm not a big church go'er) that God will only give us as much as we can handle. I truly believe that everything happens for a reason, but you will become a better person for that, I truly believe that. Hang in there my friend and feel free to email me directly and I can address my thoughts on your other questions too.
I had a normal vaginal delivery and never passed it on to my son. As long as your doctor is aware, the chances of passing it on to an infant is slim to none. I won't lie to you because it does happen, but from what I've read, as long as the doctor is aware, then they can treat the baby. Let's get you through this first. But you will be able to live a normal life :-) Everyone's herpes is different and everyone's body reacts differently, depending on their level of stress and many other factors in general. Mind you, I try to live my life as stress free as possible and that seems to be key for me. BTW, not every outbreak is a herpes outbreak either. The more you worry, the worse it will be. :-) You'll read about cases of Herpes Neuralgia (which I've only ever read about a few people who have that, it tends to be more severe) or Neonatal herpes, again, very few cases, but it does happen (you just have to communicate with your doctor and find a herpes friendly doctor who knows what to look for etc).
Future husbands and boyfriends: there is always a chance you could pass it on, however in my experience, I was in denial for the 1st 10 years of having herpes, unaware about asymptomatic shedding (which to be honest, I really wonder about whether it even exists or if it's simply not an excuse which some people use to say they didn't know they had it). I mean, do we really ever know if a person knows or if the "studies" which they claim have proven things. I don't necessarily believe everything I read and of course, I'm sure a few people might think I'm a little off my rocker too lolol, but the bottom line is, herpes is JUST a virus, you won't die from it, it's not the end of the world. :-) Oops, I get sidetracked lolol As far as I know, I've NEVER passed it on and believe I had my share of sex and unprotected sex. Those days are gone for me now, because I'm now older and wiser and so glad that all I got was herpes. I was one of the lucky ones is the way I see things :-)
Talk to you :-)
Luanne
Visited so many websites..
after all, it's a coldsore problem.
The doctors avoid emotional impact because they're too busy with other issues.... no guarantees (100%) of avoiding passing it on. Spent years
getting used to the idea and still somewhat depressed..feeling free about
sex probably a thing of the past...
Oh well, honesty is probably the best
(and only) option.
Vince
To Luanne..
I think your comments are really refreshing.. for God's sake, it's a virus, not a moral issue or whatever.
The only thing that's really strange
is the odd emotional/psychological effect this condition seems to generate. It's almost like walking around with leprosy and feeling like
an outcast. Anyway, why is it that the resources for treating STD's in the UK
have the status of being the Cinderella of medicine? It's absurd.
Thank you Vince. I've always been curious about other countries too as you don't hear much from anyone in Europe on this side of the pond in regard to herpes. What's the attitude there?
HELLO THIS IS A YOUNG BOY WHO THINKS THAT HE HAS HERPES AND THINKS HE SHOULD GET CHECKED OUT BUT IM TO AFRAID OF WHAT THEY WILL SAY I DONT WANT TO HEAR THEM SAY THAT I HAVE A DESEASE IM ONLY 17 AND NOW I THINK OF SUICIDE WHAT DO I DO THAT IS CRAZY HOW YOU COULD BE SO CALM KNOWING YOU HAVE HERPES PLEASE WRITE ME BACK
For me, it is truly NOT the end of the world having herpes. In the beginning, I totally understand that having been diagnosed, how emotionally devastated I was and this is so very normal. I really need for you to go to a clinic and be tested, that way you will know for sure. It truly could be something else and you could be worrying for nothing. My son is 14 years old and I hope that he would feel comfortable enough to come and talk to me about this if this happened to him. Are you close with either of your parents? Maybe a teacher you could talk to or another adult? You will find that because herpes is NOT life threatening, that it is simply a virus. Many people have this virus and don't even know they have it. If you have gotten this virus and are "suffering" from your first outbreak, chances are, this will be the worst episode. As time goes on, your body "gets used to it" living with the virus and you don't break out nearly as bad. The first episode is almost always the absolute worst. Even people who have "coldsores" have herpes. There are two different types, HSV1 and HSV2. Tell me more about your situation? Did you by chance receive oral sex from a gal who had an open coldsore around her mouth?
I'm here for you OK :-) Take a deep breath and we'll get you through this. You'll be just fine and your love life is NOT over. There will be so many other things in life you will need to deal with and for me, herpes has played such a small part of it after looking at the big picture.
Email me if you want to talk to me privately: mailto:ms_turtlepoint@yahoo.com
haha hi all its funny how many people get shit scared of this I have herpes (haha I choose the wrong girl when I was 15 now Im 21) and like luanne said its just a common virus now a days influenza is more dangerous. just go to your doctor and find out for shore for all you know it could just be a ingrown pubic hair which you squeeze and got infected.
just you wait there will be a curious or a permanent Supressive drug soon enough
_easy e_
Recently I was diagnosed with Herpes type One but just oral. The doctor I have did not explain anything about this disease and I have been trying to find things on the internet in order to find out. I have a ton of questions. If there is any help available through this site, that'd be the greatest.
To the Anonymous poster from: Thursday, January 10, 2008 5:00:00 PM
Feel free to ask questions here. I am more than happy to answer your questions. If I don't know the answer, I will find out for you or point you in the right direction.
Ive been diagnosed for over a year now and recently broke up with my boyfriend whom I was with the whole time. I was too drunk one night and ended up having a one night stand with this guy who is a friend of a friend and I dont know how to tell him about this.
First of all, it's NOT easy to tell, but once you do, you'll feel like a ton of bricks have been lifted off of your shoulders and telling is the "right" thing to do. Even if he's not accepting of you having herpes, he'll respect the heck out of you for being honest and who knows, maybe he'll come around. I have found that telling is also a way of "weeding" out the ones who only are in a relationship for selfish reasons. Many of us women wear our hearts on a sleeve and why wait to have our hearts broken for some other reason. Be strong, you'll do fine. I have another post on my blog about "Telling" I'll try to find the link and post it here. It might be on the left hand column of my blog under "MY favorite posts". Telling is a HUGE issue for all of us, so just remember, you're not alone.
Luanne
HI ! I was just diagnosed with herpes about 48 hours ago. I have never had an outbreak. I was wondering if since I have never had an outbreak does this mean I can still give it to someone? I was told that some people don't have outbreaks ever. Also I am having a hard time excepting it. i woke up the last two mornings thinking I had a bad dream. I'm guessing only time will cure this right? Another question I have is support groups helpful. I've read they are and are not. A friend also told me about Herpes dating websites. Should I really limit my dating to those who have Herpes? Thats all I have for now. I hope you can answer some of my questions. Thank you :)
Hi Sdiggs...thank you for stopping by. I'm just another one of those people who happened upon someone who had herpes and didn't tell me from the beginning. It was a one night thing, I was "young and dumb", but things happen and life goes on....I'm sorry that you're now going to have this for the rest of your life, BUT....it's NOT the end of the world. You will have love and be loved again and you will get to a place, with much research, time and being around others who have herpes, to realize you're not alone and things could be worse. Come to terms with it for yourself. I HIGHLY RECOMMEND surrounding yourself with others who have herpes. In fact, please do read my post on that "meeting strangers", I have it linked on the home page under "my favorite posts". Dating sights?? Yes and no. It just depends on if you live in a bigger city or not. I personally have not found them to be very useful, but I live in the boonies :-)
Because you've never had an outbreak, what caused you to get tested? It is possible that you might never have an outbreak, but be sure to read more about asymptomatic shedding. Me personally, I'm not 100pct sure it exists, but the "experts" claim it's real. Basically they're saying that you could be shedding and it not create an open sore and you'd be contagious. What they're saying is there are no guarantees and you can't go by whether you're having an outbreak or not. I don't know, I might not be the best person to ask for an opinion about shedding. I think it's a way for the drug companies to hold you in that daily drug therapy out of fear. Know what I mean.
And NO. I do not believe that we need to limit ourselves to loving someone with herpes only. We ARE NOT herpes, we just have a life long virus which is NOT life threatening. We are SO much more than herpes, so please don't let it define you and the choices you make in your future loves. Just be honest and don't rush into future relationships. Honesty is the best thing you can do for yourself and any future mates.
Thanks for all the information Luanne.
The reason I got tested was because I went in for my yearly pap and asked to get tested for everything. I got a positive result through a blood test for Herpes. They didn't really specify which type though.They just said that I was "exposed" to herpes. I told them that I have never had an outbreak and they said I might be one of the "lucky people who may never have one. They also said I would know if I have one. Isn't true that sometime you don't know if you have one? Also they said they would test me again the next time I came into the office. I thought its kinda like pregnancy, you usually don't get a false positive right?
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