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Thursday, September 21, 2006

Dr. Phil is FINALLY talking about STD's on his message boards.

Coping with STD's (is the topic name) and from what I've been reading on the message boards, it seems as though our pesky little virus has been getting the most attention in the world of STD's. Please feel free to spread the word so that Dr. Phil will hear all of us and realize how big of an issue this is for anyone living with herpes, be it HSV-1 or HSV2. If we all join together, I believe with the help of Dr. Phil, we can all make a difference in helping to stop the stigma.

In my opinion, this would be a great opportunity, if you are interested, to share your experiences with Dr. Phil. My main desire is to help spread Herpes Awareness and to get more and more people talking about, to not be ashamed or afraid to admit that they have herpes. I would love to see Dr. Phil do a show to address this topic and the more of us who post on his board, the better chances we all have of being understood and helping to take away the negative social stigma.

Here is the link for anyone interested in posting their two cents. You will need to create a user name in order to post. Wouldn't it be awesome if Dr. Phil and Oprah would do a combined show? Maybe if the two of them got in on this, they could really send some loud messages to people in general. Society needs to realize just how common having herpes is and that it's really a non-issue for the majority of people living with it, but that it can be emotionally devasting to most people living with HSV.

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7 Comments:

Blogger Angela said...

It's about time, right? Thanks for making us all aware of this Luanne. I'm going to write myself a note so I can remember to log in over there and leave my two cents. Hope you are having a fabulous weekend!! :)

Saturday, September 23, 2006 12:25:00 PM  
Anonymous Anonymous said...

I have been reading your site -- very interesting. I was the first person to talk about herpes on Dr Phil's site. I am trying to find a way to learn to live with this. I am 53 yrs old. Thanks for going on Dr Phil's message board and putting your information out there. I am hoping to join the Yahoo 50's group.

Saturday, September 23, 2006 5:39:00 PM  
Blogger Luanne said...

Thanks Yosh!! (aka: Angela). I totally agree. It's about time. Thank you to anonymous who started the message board (see above). Why in the world didn't we ever start it? DUH!!! lolol

I'm excited.

Luanne

Saturday, September 23, 2006 9:20:00 PM  
Blogger Luanne said...

Also, to anonymous. Were you able to find the link for Hover 50? If not, here you go Click here to join. All you need is a yahoo ID. I think you'll find it an enjoyable and informative group. Welcome.

Saturday, September 23, 2006 9:23:00 PM  
Anonymous Anonymous said...

Hi, I was wondering if I could ask you a question? I noticed you were writing about herpes 1 and 2 and the disadvatgaes of both and wondered if I could get your opinion on a situation I'm having? should i mention getting tested for herpes again to my boyfriend
? we went through a tough time a few months ago when he told me he had a rash on his genitals--he tried getting tested after that but then the rash went away and the doc. couldn't see anything and told him to come back in 12 weeks. I feel weird about bringing it up again because it really upset me that he might have herpes when he first told me and I almsot broke up with him about it. WE have never had sex of any kind with each other and we don't plan to unless we ever get married, but I feel that whether or not we have sex he should know whether or not he has herpes at all and I should definetly know as well.

I don't know how to bring up the subject again without making him feel like i'm on him about getting tested...if it was the other way around i think i would feel ashamed if my partner brought it up again for me to get tested, but i think it's really important for both of us to know...and it surprises me (and bothers me) that he hasn't said anything about getting tested...we were both there when the doc. told us how long to wait until he was to get tested agian--i labeled it on my calender...and the 12 weeks are already up...maybe herepes simplex II won't affect us if we aren't going to be sexually intimate with each other, but what about if he has herepes I in his mouth and he can pass it on to me by just kissing? Then that would definetly affect me now and I don't want any std especially if I'm not having sex with anyone--why should i just sit back and not ask any questions about his sexual history if it's going to affect me? I don't know how to bring this up to him without making him angry and having him withdraw from me or...I don't know..any help would be greatly appreciated and
I had a herpes test done recently and I called my doc. to get the results and I found out that I am positive for herpes I but negative for herpes II. I've never had any sores though on my mouth or lips or arond my mouth: does anyone know why this is? I was wondering if I should tell my parents and boyfriend? I'm paranoid and scared that I might give it to them because I kiss my parents on the cheek and I even kiss the people at my church on the cheek because it's customary to do in my culture and I don't wnat to spread this to them and have them have it too...can I reinfect myself like if I touch my mouth with my hands could I get herpes on my hand? Or if I touch my mouth and then touch my cheeks or my face? I don't wnat to give my boyfriend herpes and he's going to ask me what's wrong when I dodge his kisses or I don't kiss him anymore. What can I do? I don't want to reinfect myself somehwere else or infect my family or boyfriend. The only reason I got the test was because I wanted to make sure I didn't have any stds (because I did have a sexual relationship with my ex and wanted to make sure I was all right) even though my bf and I have never had sex of any kind, which herpes I I know can be transmitted without sexual contact and I don't wnat to give him anything--what can i do??? Please email me if you can with any advice you can give me. Thanks. lzavmon03@yahoo.com

Sunday, October 01, 2006 2:48:00 AM  
Blogger Luanne said...

Hi - let me try to break this down for you and/or try to point you in the right direction. I'm not a doctor, but I do understand alot of the emotional side of having herpes. My responses are bold.
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should i mention getting tested for herpes again to my boyfriend

yes, I believe it's a good thing for your partner to be tested for all STD's before engaging in sexual activities.

? we went through a tough time a few months ago when he told me he had a rash on his genitals--he tried getting tested after that but then the rash went away and the doc. couldn't see anything and told him to come back in 12 weeks.

Refer to this website to find out how to get tested without symptoms being present.

I feel weird about bringing it up

You shouldn't feel weird about it because it involves you as well. Just be matter of fact about it and let him know you just want to be sure as to what you might be dealing with. You appreciate his being honest with you and I'm sure he probably already believes that is why you won't be intimate with him because it sounds to me that you've been intimate with others and he can only assume that you're not being intimate with him because he told you he has herpes. I know that's what I would be thinking if a partner wasn't communicating with me about the topic.

I feel that whether or not we have sex he should know whether or not he has herpes at all and I should definetly know as well.

I agree but if you love each other, it's just a decision that you two need to be willing to discuss openly. It truly is nothing to fear in my opinion. Everyone is different of course.

I don't know how to bring up the subject again without making him feel like i'm on him about getting tested...if it was the other way around i think i would feel ashamed if my partner brought it up again

Society has allowed us to "feel ashamed" and you nor he should feel ashamed about having herpes.

maybe herpes simplex II won't affect us if we aren't going to be sexually intimate with each other,

But do you plan on being sexually intimate in the future? You won't die from having herpes, this is truly not the end of the world

but what about if he has herepes I in his mouth and he can pass it on to me by just kissing?

Do you even know if he has HSV-1 orally? The best thing that both of you can do is simply get tested together. How about making a date of it and both of you go and get tested for EVERYTHING. That way you'll know and you'll be able to relax and enjoy each other.

Then that would definetly affect me now and I don't want any std

According to what you say below, you already have an STD. HSV-1 is a virus which when during oral sex can be transmitted to your partner and then they would have HSV-1 genitally. You could have HSV-1 genitally already without symptoms and not even know it anyway.

why should i just sit back and not ask any questions about his sexual history if it's going to affect me?

You should ask. You have every right and it is your responsibility to know, so you are thinking the right way and it's OK.

I don't know how to bring this up to him without making him angry and having him withdraw from me

And if he gets angry over this, that might be just a good reason to realize that maybe he's not the one for you? The way I see it is, this is an issue for him too or he would have NEVER told you about it. He apparently finds that this was important enough information to share with you. Is he on suppressive therapy?

I had a herpes test done recently and I found out that I am positive for herpes I but negative for herpes II.

I assume you're saying you have it orally and not genitally? If I were you, I would go back to my doctor and ask him to clarify because it doesn't seem to me that he gave you very specific information and/or didn't take the time to help you understand

I've never had any sores though on my mouth or lips or arond my mouth: does anyone know why this is?

It's called asymptomatic shedding. You could be a carrier of the virus but never have had any obvious outbreaks. This is extremely common. You could have gotten it from an aunt or a sibling or a parent. People like to call them coldsores. Ever recall having a coldsore? Coldsore is herpes I. It just doesn't sound as yukky to call it a coldsore.

I was wondering if I should tell my parents and boyfriend? I'm paranoid and scared that I might give it to them because I kiss my parents on the cheek and I even kiss the people at my church on the cheek because it's customary to do in my culture and I don't wnat to spread this to them and have them have it too...

My best recommendation there is to abstain from "kissing" them if you're having an outbreak which you say you've never had. From the things I've read, a simple peck on the cheek or lips is not something you should be concerned about. It's the long passionate kissing which you carry a higher risk of passing it along, but only if you're "shedding" or having an active outbreak. I say kiss away.

can I reinfect myself like if I touch my mouth with my hands could I get herpes on my hand? Or if I touch my mouth and then touch my cheeks or my face? I don't wnat to give my boyfriend herpes and he's going to ask me what's wrong when I dodge his kisses or I don't kiss him anymore. What can I do? I don't want to reinfect myself somehwere else or infect my family or boyfriend. The only reason I got the test was because I wanted to make sure I didn't have any stds (because I did have a sexual relationship with my ex and wanted to make sure I was all right)

First of all, you really need to realize that having herpes is NOT a big deal. Many of us in the herpes community refer to genital herpes as a "coldsore below the belt". The worst thing about herpes of any kind is the emotional effects we suffer from it. The physical "pain" is only severe, from what I have experienced and read from others, when you get your initial outbreak. That happens, IMO, to let you know that you have this virus in your system. Your body needs to take it's time getting used to having herpes. I honestly don't believe that herpes should define a relationship and it sounds to me like you're allowing this to be a issue which doesn't need to be so pronounced. Find out exactly what both of you are dealing with. It sounds to me like both of you already have herpes and if he has HSV2 (genitally) and you perform oral sex on him, yes you could get HSV2 orally, but from all the things I've read from trusted people, HSV2 does not like to hang out in the oral area. You, by having HSV1 (orally I'm assuming) can pass HSV1 onto a person if you have oral sex with them, then they would have HSV1 genitally.

I hope this has helped you.

Sunday, October 01, 2006 2:17:00 PM  
Anonymous Anonymous said...

Well, I am a victim of it and I have read up on it and it says that there actually is a cure found for herpes 1&2 at "FAU" but they have to have someone agree to get the cure tested what this cure will do, will not take the virus out of your body but it will deactivate the herpes virus cells which will cause you to have unprotected sex and not have your partner catch herpes because it will almost be as if you have no herpes at all but you still will it just wont affect you or your partner...they said that the cure was called HammerHead Ribozomes. I guess we will have to wait and see what happens.

Monday, September 29, 2008 11:54:00 PM  

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